European Network of Cancer Registries (ENCR-JRC)




The Joint Research Centre (JRC) is the European Commission’s science and knowledge service which employs scientists to carry out research in order to provide independent scientific advice and support to EU policy.

The European Network of Cancer Registries (ENCR) promotes collaboration between cancer registries, defines data collection standards, provides training for cancer registry personnel and regularly disseminates information on cancer incidence and mortality in Europe.

The ENCR is in operation since 1990 and was established within the framework of the Europe Against Cancer programme of the European Commission on the initiative of the International Agency for Research of Cancer (IARC), Association of Nordic Cancer Registries (ANCR), International Association of Cancer Registries(IACR) and Latin Language Registry Group (GRELL).

The Network has the following objectives:

1) to improve the quality, comparability and availability of cancer incidence data;

2)to create a basis for monitoring cancer incidence and mortality in the European Union;

3) to provide regular information on the burden of cancer in Europe;

4) to promote the use of cancer registries in cancer control, health-care planning and research.

Cancer registries are eligible for FULL ENCR Membership provided that they: 1) are population-based (including site or age-specific registries). Population based cancer registries are defined as registries that collect data on all new cases of cancer occurring in a specified population in a defined geographical area; 2) currently operate in countries within the UN geographical definition of Europe, plus Cyprus; and 3) have completed the ENCR questionnaire within the last 5 years (e.g. the membership questionnaire, or the 2015 ENCR-JRC Call for Data Questionnaire), and update the information on request. The proposal will benefit from the support of the Joint Research Centre of the European Commission, Secretariat of the European Network of Cancer Registries (ENCR) to facilitate the involvement of European cancer registries. Additionally, the JRC may facilitate access to other Commission databases in the environmental field that are relevant to the study such as on air and soil pollutants. These health data are important for the ELISAH Project. ENCR-JRC will support the ELISAH project as a third party giving in-kind contributions.

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